Treatment
Treatment is supportive. It involves managing seizures and any other health concerns, and using programs to help the family and child cope with delays in development.
Support Groups
Aicardi Syndrome Foundation – www.aicardisyndrome.org
National Organization for Rare Disorders (NORD) – www.rarediseases.org
Prognosis (Expectations)
The outlook depends on how severe the symptoms are and what other health conditions are present.
Nearly all children with this syndrome have severe learning difficulties and remain completely dependent on others. However, a few have some language abilities and some can walk on their own or with support. Vision varies from normal to blind.
Complications
Complications depend on the severity of symptoms.
Calling Your Health Care Provider
Call your health care provider if your child has symptoms of Aicardi syndrome. Seek emergency care if the infant is having spasms or a seizure.
Aicardi syndrome: Overview, Causes
Aicardi syndrome: Symptoms & Signs, Diagnosis & Tests
Aicardi syndrome: Treatment
Reviewed By : Neil K. Kaneshiro, MD, MHA, Clinical Assistant Professor of Pediatrics, University of Washington School of Medicine. Also reviewed by David Zieve, MD, MHA, Medical Director, A.D.A.M., Inc.
