Treatment
There is no known cure for Duchenne muscular dystrophy. Treatment aims to control symptoms to maximize quality of life. Gene therapy may become available in the future.
Activity is encouraged. Inactivity (such as bedrest) can worsen the muscle disease. Physical therapy may be helpful to maintain muscle strength and function. Orthopedic appliances (such as braces and wheelchairs) may improve mobility and the ability to care for yourself.
Support Groups
You can ease the stress of illness by joining a support group where members share common experiences and problems. See muscular dystrophy – support group. The Muscular Dystrophy Association is an excellent source of information on this disease.
Prognosis (Expectations)
Duchenne muscular dystrophy leads to quickly worsening disability. Death usually occurs by age 25, typically from lung disorders.
Complications
- Cardiomyopathy
- Congestive heart failure (rare)
- Deformities
- Heart arrhythmias (rare)
- Mental impairment (varies, usually minimal)
- Permanent, progressive disability
- Decreased mobility
- Decreased ability to care for self
- Pneumonia or other respiratory infections
- Respiratory failure
Calling Your Health Care Provider
Call your health care provider if:
- Your child has symptoms of Duchenne muscular dystrophy
- Symptoms worsen, or new symptoms develop, particularly fever with cough or breathing difficulties
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Duchenne muscular dystrophy : Overview, Causes, & Risk Factors
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Duchenne muscular dystrophy : Symptoms & Signs, Diagnosis & Tests
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Duchenne muscular dystrophy : Treatment
Review Date : 3/9/2010
Reviewed By : Neil K. Kaneshiro, MD, MHA, Clinical Assistant Professor of Pediatrics, University of Washington School of Medicine; Daniel B. Hoch, PhD, MD, Assistant Professor of Neurology, Harvard Medical School, Department of Neurology, Massachusetts General Hospital. Also reviewed by David Zieve, MD, MHA, Medical Director, A.D.A.M., Inc.
The information provided herein should not be used during any medical emergency or for the diagnosis or treatment of any medical condition. A licensed medical professional should be consulted for diagnosis and treatment of any and all medical conditions. Call 911 for all medical emergencies. Links to other sites are provided for information only — they do not constitute endorsements of those other sites. © 1997- 2010 A.D.A.M., Inc. Any duplication or distribution of the information contained herein is strictly prohibited.
